I am delighted to become a Patron of the Amyloidosis Support Group UK
Its website is an extremely important
resource for diffusing knowledge about this rare and all too frequently misdiagnosed disease. I myself have had Amyloidosis
and am aware of how little information there is out there, particularly of a less clinical nature.
My own experience
was of a long and winding road to final diagnosis, with many diversions and false exits. Late diagnosis is unfortunately far
from uncommon, and can have serious consequences.
So, many heartfelt congratulations for having created something
that has the power to spread much needed enlightenment, thereby saving lives and reducing suffering.
that now, in the words of the website, "you are not alone."
are delighted about the creation of the British Amyloidosis Support Group and look forward to working
with you. Amyloidosis is a rare and lonely disease, and this development will no doubt prove to be a wonderful resource
for amyloidosis patients and their families and carers."
Amyloid Animated Infofilm
This short animated film is designed to encourage better awareness and understanding of amyloidosis.
awareness of the condition will help to increase proper diagnosis, early treatment and positive outcomes.
The information on this website is not meant to replace the advice of your medical team. They are the best
people to ask if you have questions about your individual situation.
www.amyloidsupportgroup.co.uk - you are not alone anymore