Amyloid Support Group UK

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**Latest News**
Patient & Family AL amyloidosis Infoday- Friday 13 September 2013
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**Latest News**
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Welcome to

Amyloid Support Group UK

'You are not alone anymore'

This is the first support group website in the UK for people living with amyloidosis.

This site is designed to not only be a source of information and guidance for sufferers and their relatives, but also a place where people can share their experiences of the condition.

Amyloidosis affects approximately 600 new people in the UK each year. It usually affects people between the ages of 50 and 70 years, but can occur in younger adults.

On this site you can find out some information about the different forms of amyloidosis and read some powerful and positive stories by people living with amyloidosis.

Don't forget to visit the Forum where you can chat with other people and discuss issues.

Before you start, please have a look at the informative animated film below.

Amyloidosis Awareness from Cartoon Medicine on Vimeo.

"We are delighted about the creation of the British Amyloid Support Group and look forward to working with you.  Amyloidosis is a rare and lonely disease, and this development will no doubt prove to be a wonderful resource for amyloidosis patients and their families and carers."


Professor Philip Hawkins,

National Amyloidosis Centre,

Royal Free Hospital 



Amyloid Animated Infofilm

This short animated film is designed to encourage better awareness and understanding of amyloidosis.

Better awareness of the condition will help to increase proper diagnosis, early treatment and positive outcomes.


Information Disclaimer

The information on this website is not meant to replace the advice of your medical team. They are the best people to ask if you have questions about your individual situation.
 - you are not alone anymore