Patient & Family AL amyloidosis Infoday- 9th September 2011
for information and ticket booking please click 'news' **Latest
News** Watch a webcast of Amyloidosis specialist Dr Merlini at the International Myeloma Workshop
in Paris - click on the news page **Latest News** Do you have a story to share? email
us now on info@amyloidsupportgroup.co.uk
Welcome to
Amyloid Support Group UK
'You are not
alone anymore'
This is the first support group website in the UK for people living with amyloidosis.
This site is designed to not only be a source of information and guidance for sufferers and their relatives,
but also a place where people can share their experiences of the condition.
Amyloidosis affects approximately 600 new people in the UK each year. It usually affects people between the
ages of 50 and 70 years, but can occur in younger adults.
On this site you can find out some information about the different forms of amyloidosis and read some
powerful and positive stories by people living with amyloidosis.
Don't forget to visit the Forum where you can chat with other people and discuss issues.
Before you start, please have a look at the informative animated film below.
"We are delighted
about the creation of the British Amyloid Support Group and look forward to working with you. Amyloidosis is a rare
and lonely disease, and this development will no doubt prove to be a wonderful resource for amyloidosis patients and their
families and carers."
Professor Philip Hawkins,
National Amyloidosis Centre,
Royal Free Hospital
Amyloid Animated Infofilm
This short animated film is designed to encourage better awareness and understanding of amyloidosis.
Better
awareness of the condition will help to increase proper diagnosis, early treatment and positive outcomes.
Information Disclaimer
The information on this website is not meant to replace the advice of your medical team. They are the best
people to ask if you have questions about your individual situation.
www.amyloidsupportgroup.co.uk - you are not alone anymore